by Babett Horn | Jul 27, 2021 | Awareness, Grief and Loss, Long QT Syndrome
Joriale Horn Can you tell me a little bit about your family’s SADS journey – from diagnosis to where you are today? Our oldest daughter, Jori, was 27 and at work when she fell straight back, and was gone. Her office was a chiropractor’s, and Dr. Angela Tarjick, a...
by Madison Chesser | Jul 20, 2021 | Awareness, Long QT Syndrome, SCA Survivor, Sudden Cardiac Arrest
Can you tell me a little bit about your family’s SADS journey? When I was little, we knew something was wrong, but we didn’t know what it was. At eight, I was diagnosed with LQTS. At 10, I had a cardiac arrest jumping over a fence. After that, my mom has been really...
by Kennedy Cooper | Jul 9, 2021 | Awareness, CPVT, Grief and Loss, ICD, SCA Survivor
Could you talk a little bit about your family’s SADS journey? My story begins on June 11, 2001, when my mom had a Sudden Cardiac Arrest. And unfortunately, she passed away. When you’re six years old, and you lose a parent unexpectedly, there are so many unanswered...
by Nora Lambert | Jul 2, 2021 | Awareness, Long QT Syndrome
Dr. Michael Vincent with Nora Lambert Can you tell a little bit about your family’s SADS journey? My son Matthew was born in 1969; he was the third child. His first three years were absolutely wonderful –he was a fine healthy boy. He suddenly got a rash one day, and I...
by Michaela Hetzler | Jun 9, 2021 | Awareness, ICD, Long QT Syndrome, SADS Spotlight, Sports/Exercise
At the age of 15 years old, I was a three season athlete in high school: soccer, basketball, and track and field. They were a huge part of how I defined myself – I loved sports. I was in a track and field hurdle event, got dizzy at the finish line, and almost passed...
by Becky Knowles | May 19, 2021 | Awareness, Fundraising, Long QT Syndrome
Can you tell me a little bit about your family’s SADS journey? Our son was seven years old when he cardiac arrested. We went to go wake him up for school and we found him dead in bed, and we did CPR. He was in a coma, and had hypothermia therapy, and then recovered....
