by Sophie Thatcher | May 21, 2020 | Awareness, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
Name: Sophie Thatcher Age: 19 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta blockers How were you diagnosed? In 2018, as a junior in high school, I decided to try out for my school’s water polo team as a completely new sport. On the last...
by Steve Inman | Apr 20, 2020 | Awareness, Genetic Testing, Long QT Syndrome, Sports/Exercise
Steve and his son Mason from a night in the hospital Hello. My name is Mason Inman. I am 12. On March 18th, 2019 while attending school, I collapsed walking the track. I came through they tell me after about 3 minutes. I was taken to hospital by ambulance with my...
by Gail Zur | Apr 20, 2020 | Awareness, WPW
I was misdiagnosed as a child: I was told I had a heart murmur and often couldn’t join in with physical activities due to fainting a lot. I now know that’s because my body was being starved of oxygen due to my heart rhythm beating too fast. I was eventually diagnosed...
by Cicely Enriquez | Apr 20, 2020 | Awareness, Long QT Syndrome, Parenting, Sports/Exercise
Joey at golf camp through Children’s Heart Association in Cincinnati. When my son, Joey, was six years old, he was diagnosed with Long QT Syndrome Type 2. The day he was diagnosed was the hardest day of my life but I want to tell our story in the hopes that my...
by Cathy Overs | Apr 20, 2020 | Awareness, Brugada Syndrome, Genetic Testing, Schools, Sudden Cardiac Arrest, Uncategorized
Will was 6 years old when he first experienced a fainting episode. He was walking up the hill with his dad & sister one day from school when he fainted. We couldn’t tell if the kids were making it up & playing a joke on dad while I was at work. The next...
by Elizabeth Napolilli | Mar 12, 2020 | Awareness, Genetic Testing, ICD, Long QT Syndrome, SADS Spotlight
Elizabeth is studying to be a Physician Assistant (with a passion for cardiology!) Name: Elizabeth NapolilliAge: 30Which SADS condition do you have? Long QT Syndrome- Type 1When were you diagnosed? I began treatment in about 2000 with beta blockers but my diagnosis...
