by Cian Bennett | Jul 23, 2020 | Awareness, CPVT, SADS Kids, SADS Spotlight, SADSConnect, Sports/Exercise
Name: Cian Bennett Age: 13 Diagnosis: Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT) Age of Diagnosis: 13 What led to your diagnosis? I had a fainting episode at home and my pediatrician sent me to a cardiologist. My first...
by Ayden | Jul 10, 2020 | Awareness, CPR, Long QT Syndrome, SADS Kids, SADS Spotlight, SADSConnect, Sports/Exercise
Name: Ayden Age: 13 Diagnosis: Long QT type 1; diagnosed at age 12 I was really sick and dehydrated my mom took me to the doctor and they sent me to the ER to get IV fluids. The doctor did an ECG to see if she could give me some medicine to stop puking and noticed an...
by Susana Rodriguez | Jun 1, 2020 | AEDs, Awareness, CPR, CPR and AED Awareness Week, Long QT Syndrome, SADS Spotlight, Sports/Exercise
Susana participates in triathlons as well as the Paralympics. Name: Susana Rodríguez Age: 32 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta blockers + always carry my AED to training. How were you diagnosed? When I was 28 I started...
by Sophie Thatcher | May 21, 2020 | Awareness, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
Name: Sophie Thatcher Age: 19 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta blockers How were you diagnosed? In 2018, as a junior in high school, I decided to try out for my school’s water polo team as a completely new sport. On the last...
by Steve Inman | Apr 20, 2020 | Awareness, Genetic Testing, Long QT Syndrome, Sports/Exercise
Steve and his son Mason from a night in the hospital Hello. My name is Mason Inman. I am 12. On March 18th, 2019 while attending school, I collapsed walking the track. I came through they tell me after about 3 minutes. I was taken to hospital by ambulance with my...
by Gail Zur | Apr 20, 2020 | Awareness, WPW
I was misdiagnosed as a child: I was told I had a heart murmur and often couldn’t join in with physical activities due to fainting a lot. I now know that’s because my body was being starved of oxygen due to my heart rhythm beating too fast. I was eventually diagnosed...
