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SADS Spotlight: CJ

Name: CJ HeilAge: 20Which SADS condition do you have? Long QT SyndromeWhen were you diagnosed? Oct. 2010How are you treated? Beta Blocker (Nadolol) What has been the biggest challenge you’ve faced in living with your diagnosis? Knowing that even though it’s not...

LIVE-LQTS

Calling LIVE-LQTS Research Study Participants! If you are enrolled in the LIVE-LQTS study, we would love to hear from you and thank you for participating.  SADS Foundation is creating a web page to recognize members involved in this three-year study.  We...

A Walker, Not A Runner

Some positives & observations of now being a walker & not a runner: 1.   When it’s 4:30 in the morning I don’t even know cause I’m still sleeping; 2.   I don’t have to experience being 20 miles into a marathon feeling like hell & say, shoot, I still got...

Tales from the Big Red box

Every 10 years the American College of Cardiology publishes a large document about athletic eligibility for people with heart issues. These guidelines are written at the Bethesda Conference. The last one was in 2015, and the one previous to that was in 2005. This...