by Alice Lara | Jun 5, 2020 | AEDs, CPR, CPR and AED Awareness Week, Long QT Syndrome, Uncategorized
Aurora went into tachycardia in February 2019, shortly after turning 2. She has Long QT Syndrome and she had RSV and rhinovirus. It was 3AM and my husband and I used our AED and CPR to save her life before paramedics arrived. She is now...
by Samantha Lubowsky | Apr 23, 2020 | Brugada Syndrome, SADS Spotlight, Uncategorized
Name: Justin Price Age: 4 years old Which SADS condition do you have? Brugada Syndrome When were you diagnosed? He was diagnosed one week after his first birthday (April 2016) after going into cardiac arrest at home. How are you treated? He was treated with an ICD,...
by Cathy Overs | Apr 20, 2020 | Awareness, Brugada Syndrome, Genetic Testing, Schools, Sudden Cardiac Arrest, Uncategorized
Will was 6 years old when he first experienced a fainting episode. He was walking up the hill with his dad & sister one day from school when he fainted. We couldn’t tell if the kids were making it up & playing a joke on dad while I was at work. The next...
by Tenier Sims | Apr 20, 2020 | Brugada Syndrome, Uncategorized
Name: Tenier Sims Age: 43 Which SADS condition do you have? Brugada Syndrome When were you diagnosed? October 2018 How are you treated? Currently being monitored How/when were you diagnosed? I was diagnosed when I became so fatigued that I couldn’t walk, so I went to...
by Paula Best | Apr 16, 2020 | Uncategorized
Paula and her son Name: Paula Best Condition: Long QT Syndrome Diagnosed: 1999 aged 17 Treatment: Beta Blockers – 160mg Propanol per day What has been the biggest challenge you’ve faced in living with your diagnosis? When my son was born last August, he...
by Alice Lara | Mar 18, 2020 | Uncategorized
The SADS Foundation thanks Samantha Wilder for being a part of the SADS Foundation Heart Bowl during the month of February and bringing in the most donors for this campaign!! Name: Samantha Wilder Age: 30 Which SADS condition do you have? Long QT Syndrome, Type 1...
