Supporting Families. Saving Lives.
The annual Brian Anderson Memorial 5K run, or the "BA5K", is an event organized to remember Brian Anderson.
Event location:
Mother's Day, Sunday, May 12th, 2013
Washington Lake Park, Sewell, NJ (directions)
The Climb to Conquer SADS is one of the SADS Foundation’s largest annual fund-raisers, partnering skilled climbers with SADS Families as we raise awareness of life-threatening arrhythmias.
Event location: Mt. Rainier, Washington State Event start: 7/8/2011 12:00:00 AM
Event location: Mt. Rainier, Washington State Event start: 7/9/2011 12:00:00 AM
Brittany's Trees is an annual holiday fundraiser dedicated to raising funds in memory of Brittany Valene who passed away due to an undetected SADS condition.
Event location: Carol Stream, IL Event start: 7/23/2011 12:00:00 AM
Genetic Screening and Treatment Options for Inherited Arrhythmias: When and Why?
Event location: NYU Langone Medical Center Cardiovascular Genetics Program Smilow Research Building, First Floor 8:30 AM - 3:00 PM Event start: 11/23/2013 12:00:00 AM
This annual fundraiser is in memory of Ryan Weidler who passed away unexpectedly due to an undiagnosed SADS condition.
Event location: Center Square Golf Club, 2620 Skippack Pike/Route 73, Norristown, PA 19403 Event start: 7/22/2013 12:00:00 AM
This wonderful holiday tradition is in memory of Brittany Valene who passed away in 2005.
Event location: Carol Stream, IL (and surrounding neighborhoods) Event start: 11/26/2011 12:00:00 AM
This fun night out is in memory of Rebecca Righeimer, the neice of Jeannie & Doug Balsam.
LITTLE RICKY'S
WINNETKA
Carol Meyer Willingham, Soprano, to Sing in Benefit Performance in memory of nephew, Brett Ivan Anderson.
Event location: The concert will be held at 7:00 PM at the Chapel at Caliber Oak outside of Salado, and refreshments will be served. The requested donation is $25 and reservations are required. Please call Denise at (254) 760-1590. Event start: 2/12/2012 12:00:00 AM
Connor Senn Memorial Soccer Match & Symposium on Sudden Cardiac Death
Event location: Columbus, Ohio Further details TBA Event start: 5/8/2012 12:00:00 AM
Family and friends of Stephanie Mejias are hosting a kick-ball tournament raising funds in her memory. Stephanie passed away suddenly and unexpectedly in her sleep on July 27, 2009.
Event location: Chisholm Park / 100 South Springfield Avenue, Sprinfield, NJ Event start: 6/30/2012 12:00:00 AM
Maureen Schulman and the Northern Star Quilters Guild have graciously donated this beautiful quilt to raise funds for the SADS Foundation.
Event location: Nationwide Event start: 3/16/2012 12:00:00 AM
Join SADS volunteer, Bob Timm as he raises awareness of SADS conditions at the South Huntington Union Free School District's Annual Health and Wellness Fair.
Event location: Walt Whitman High School 01 West Hills Road Huntington Station, NY 11746 (631) 812-3800 Event start: 3/29/2012 12:00:00 AM
The Run for Ryan is a 5K run dedicated to raising money for the SADS Foundation in honor of Ryan Davis Lopynski, a loving son, brother, grandson, cousin, and best friend who passed away from a SADS condition.
Event location: Virginia Tech University Cross Country Course Blacksburg, Virginia Event start: 4/22/2012 12:00:00 AM
This event is in memory of Sabrina Keller who passed away suddenly and unexpectedly due ot an undaignosed SADS condition.
Event location: Moonlight Amphitheatre 1200 Vale Terrace Drive, Vista, CA 92084 Event start: 5/19/2012 12:00:00 AM
This event is put on by the Tolosky Family in loving memory of their daughter and sister, Christie, who died of previously undetected Long QT in June of 2005.
Event location: Columbia Pavilion's Saratoga SPA State Park Ballston Lake, NY Event start: 9/29/2012 12:00:00 AM
Each year, Bill and Sally Layton celebrate Oktoberfest with a benefit for the SADS Foundation. This year will be their 15th time hosting the event! Hundreds of friends and family members join the Laytons for a silent auction, all you can eat brats, beer and more!
Event location: Bill and Sally Layton's Backyard 3225 Brenner Place Colorado Springs, CO 80917 Event start: 9/15/2012 12:00:00 AM
This special SADS awareness day is held in honor of Hunter Gizzi and will take place at his high school football game in Irvington, NY.
Event location: Irvington, New York Event start: 9/22/2012 12:00:00 AM
The Heart Rhythm Society's Annual Scientific Sessions is the premier event for anyone involved in research or delivery of arrhythmia care or services, bringing together leading experts from around the world.
Event location: Boston, MA Event start: 5/9/2012 12:00:00 AM
The SADS Foundation will host the 6th International Conference: Preventing Unexpected Sudden Death in the Young October 12-14 in Salt Lake City, UT.
Event location: Salt Lake City Marriott University Park Hotel 480 Wakara Way Salt Lake City, Utah Event start: 10/12/2012 12:00:00 AM
Bring your family and friends for a day of ALL YOU CAN EAT food, DJ, raffles, cash bar, and a softball game in honor of Philip!
Event location: Time: 12:30 P.M. TO 5:00 P.M. Location: Mosall's Grove 289 Schoolhouse Road Guiderland, NY 12203 Event start: 8/12/2012 12:00:00 AM
SADS Foundation Medical Education Seminar in Salt Lake City, UT
The New Yorker Restaurant
60 West Market Street (340 South)
Salt Lake City, Utah 84101
801-363-0166
Event location: Where: NYU Langone Medical Center 550 First Avenue, New York, NY 10016 Room: Smilow Research Building, 1st Floor Event start: 11/23/2013 12:00:00 AM
Event location: January 25 - 26, 2013 Disney's Grand Californian Hotel 1600 South Disneyland Drive Sequoia Ballroom Anaheim, CA 92808 Event start: 1/25/2013 12:00:00 AM
Help the SADS Foundation reach its goal of raising $50,000 BEFORE the end of 2012! Click on the event to find out how you can help us!
Event location: In your own home! Event start: 12/31/2012 12:00:00 AM
A Heart & Soul Grant program poem writing contest! You can be a winner!
Event location: In the comfort of your own home! Event start: 1/2/2013 12:00:00 AM
The SAD Foundation, in conjunction with Fairfield Medical Center and Nationwide Children's Medical Center, is prepping for another great year of world-leading education and discussions on preventing unexpected sudden death in the young.
Event location: Columbus, OH Event start: 11/1/2013 12:00:00 AM
Please join Jeannie and Doug for the evening in celebration of Jeannie’s birthday.
Event location: Little Ricky's 540 Lincoln Avenue Winnetka, IL 60093 Event start: 1/31/2013 12:00:00 AM
First support/social group for local folks who can understand life with SADS conditions. Chat, eat, drink and have fun! Family, kids and your support team are invited as well.
Event location: Encino, CA (exact address to be specified after you RSVP) Event start: 3/16/2013 12:00:00 AM
Event location: Stratton Meyer Park, Green River, WY Event start: 6/8/2013 12:00:00 AM
Join us for fun, music by The HEAP and raising funds for the SADS Foundation!
Event location: Smith's Olde Bar--Atlanta, GA Event start: 6/1/2013 12:00:00 AM
Krisy’s Kreations invites you to our 1st annual “From Day to Night” 2013 Collection Fashion Show in honor of Alva Jean Cambric-Hargrove and to benefit the SADS Organization.
Join Sharon Lentino for a 30-mile round-trip journey around the beautiful Lake Shore!
Event location: Chicago, IL Event start: 5/26/2013 12:00:00 AM
Join experts at the Cincinnati Children's Hospital for a FREE online Q&A session.
Event location: Online at 7:00 P.M. Eastern Time Event start: 4/9/2013 12:00:00 AM
The Spring Benefit Concert. Stop SADS, Live Large!
Event location: Virtual! Listen live via the internet. And in Nashville, TN RSVP to receive information to tune in live!
Take Heart San Diego- Long QT Families and Kids Support Group Meeting
Join headlining international recording artist Dan Reed in addition to Mark Evans and Sandy Hall at the Venetian Social Club. Light fare and non-alcoholic drinks will be provided. Cash bar available. Great music, great food, great atmosphere for a great cause.
Event location: Venetian Social Club 8030 Germantown Avenue Philadelphia, PA 19118 Event start: 11/3/2013 12:00:00 AM
Come watch the New Jersey Roller Derby vs. the Southern Delware Roller Girls in this can't miss event in loving memory of Danny Mauriello, proceeds will benefit the SADS Foundation.
Event location: Inline Morristown 38 Dumont Place Morristown, NJ 07960 Event start: 9/14/2013 12:00:00 AM
This even is put on b y the Tolosky Family in loving memory of their daughter and sister, Christie, who died of previously undected Long QT in June, 2005.
Event location: Columbia Pavilion's Saratoga SPA State Park, Saratoga, Springs, NY Event start: 9/29/2013 12:00:00 AM
You are invited to the 16th Annual Hanss Oktoberfest hosted by Bill & Sally Layton. Make sure to wear your ethnic clothing for this can't miss event benefiting the SADS Foundation. Bring your friends and family and be ready to enjoy this wonderful Autumn event.
Event location: 3225 Brenner Pl. Colorado Springs, CO 80917 Event start: 9/21/2013 12:00:00 AM
A fun, full-day event aimed to educate and support adolescents and young adults with ICDs and their families.
Event location: Frances C. Arrillaga Alumni Center at Stanford University 326 Galvez Street Stanford, CA 94305 Event start: 1/25/2014 12:00:00 AM
Medical Examiners and Coroners will want to register for this CME seminar on SCA in Lancaster, PA
Event location: Stager Auditorium at Lancaster General Hospital Lancaster, PA Event start: 3/27/2014 12:00:00 AM
This conference offers an opportunity for families with children and adolescents to network with one another; to hear health professionals speak about cardiac health, ICDs, and healthy living; and to hear directly from patients about their experiences living with an ICD.
Event location: Marriot University Park Hotel 480 Wakara Way Salt Lake City, Utah 84108 Event start: 8/30/2014 12:00:00 AM
We are pleased that Morristown Medical Center will be our co-host and has offered their facilities for our Saturday meeting.
LEARNING OBJECTIVES: The overall goals of the activities are to enhance learners� knowledge and competency to incorporate evidence-based updates in the care of athletes to mitigate their risk for sudden cardiac death (SCD).
Event location: Embassy Suites Raleigh-Durham/Research Triangle 201 Harrison Oaks Blvd Cary, North Carolina 27513 Contact christy.darnell@duke.edu with questions. Register at https://continuingeducation.dcri.duke.edu/1st-annual-duke-sudden-cardiac-death-athletes-symposium Event start: 4/12/2014 12:00:00 AM
Heart Rhythm Society (HRS) Community Event presents activities desgined to provide general education on Hand Only CPR techniques, how to use an AED properly, and to increase awareness of sudden cardiac arrest to prevent sudden cardiac death. The event is brought together by the SADS Foundation, University of California San Francisco, Stanford University, and the Health E Heart Alliance. We welcome your attendance!
Event location: 50 Post Street San Francisco, California 94104 Event start: 5/7/2014 12:00:00 AM
Survivors play a special role at ECCU. Your stories are important, because they serve as a catalyst for community action. Come share your story, honor rescuers and give back to the community. Meet the scientists and community champions who are all gathering at ECCU 2014!
Event location: Paris Hotel in Las Vegas, NV Event start: 6/3/2014 12:00:00 AM
Bike the Drive in Chicago with nearly five hours of car-free riding while enjoying breathtaking views of the city and the lake.Sign up and choose the SADS Foundation as your charity partner and ride with a cause!
Event location: Lake Shore Drive, Chicago, IL Event start: 5/25/2014 12:00:00 AM
Event location: Center Square Golf Club, 2620 Skippack Pike/Route 73, Norristown, PA 19403 Event start: 8/11/2014 12:00:00 AM
Come join us for the 1st Annual 5k Walk and a day of family fun, bounce houses, DJ, raffles, face painting, zip line, clowns, a petting zoo and more!
Event location: Midvale Country Club 2387 Baird Rd. Penfield, NY 14526 Event start: 8/24/2014 12:00:00 AM
The Climb to Conquer SADS is one of the SADS Foundation’s largest annual fund-raisers. Skilled climbers partner with SADS Families as we raise awareness of life-threatening arrhythmias.
Each year, Bill and Sally Layton celebrate Oktoberfest with a benefit for the SADS Foundation.
Event location: 3225 Brenner Place Colorado Springs, CO 80917 Event start: 9/20/2014 12:00:00 AM
This fund raising event is enthusiastically organized by the Tolosky Family in loving memory of their daughter and sister, Christie, who died of a previously undected Long QT in June, 2005.
Event location: Columbia Pavilion's Saratoga SPA State Park, Saratoga Springs, NY Event start: 9/22/2018 12:00:00 AM
Join us in New York next May for the SADS International Conference: Preventing Sudden Cardiac Death in the Young.
Event location: Event start: 5/29/2015 12:00:00 AM
5k Run / 1 Mile Walk / Kids Races
Event location: Albers Ave, behind West Park Station. Albers Ave is 1 block South of Rocky River Drive and Lorain (on East side of Rocky River Drive) West Park Station: 17015 Lorain Avenue, Cleveland, OH Event start: 8/9/2014 12:00:00 AM
University of Iowa Children's Hospital will be hosting Iowa's 11th Annual Young Hearts with ICDs.
Event location: To register, or for more information, please email Brett Willenborg at brett-willenborg@uiowa.edu Event start: 9/20/2014 12:00:00 AM
The conference will create an opportunity for all those involved in the care of athletes and young individuals in general to gain up to date education relating to the effects of athletic training and the diagnosis and management of individuals with inherited cardiac diseases, in the hope of preventing tragic young sudden deaths in the future.
Disney Grand Californian Resort 1600 S. Disneyland Drive Sequoia Ballroom Anaheim, California 92808 United States
Brittany’s Trees is a neighborhood tradition (and now nationally recognized event) that celebrates the holidays and the memory of Brittany Valene.
Event location: Carol Stream, IL If you have any questions, feel free to send an email to info@brittanys-trees.com or call: Jim Guthrie at 312-961-9558 Event start: 11/24/2018 12:00:00 AM
This will be the 5th Annual Celebrate Wayne and Conquer SADS event to celebrate the life of Wayne Sawyer in a way he would love while raising awareness and funding for the SADS Foundation.
Event location: Georgia Theatre, Athens, Georgia Event start: 12/12/2014 12:00:00 AM
Event location: 3643 Barclay Downs Drive Charlotte, NC 28209 Host: The Ciciarelli Family (Lee) Event start: 12/13/2014 12:00:00 AM
This is a great event where hundreds of kids jump rope, raising awareness and funds for SADS.
Event location: Shelton School, Dallas, Texas Event start: 2/13/2015 12:00:00 AM
Event location: The Seaport Hotel 1 Seaport Lane Boston, MA For more information please contact Matt at Matt@sads.org Event start: 5/12/2015 12:00:00 AM
Raising money for Long Qt 8 awareness while supporting local designers and businesses.
Event location: 3643 Barclay Downs Drive Charlotte, NC Event start: 6/19/2015 12:00:00 AM
The 18th Annual Hanss Oktoberfest will be held on September 19, 2015 in Colorado Springs, CO, come join the festivities!
Event location: 3225 Brenner Place Colorado Springs, CO 80917 Event start: 9/19/2015 12:00:00 AM
For more information and registration see www.20yrsCG.nl
Event location: Amsterdam, the Netherlands www.20yrsCG.nl Event start: 12/4/2015 12:00:00 AM
Golf Tournament in Memory of Ryan Weidler benefiting the SADS Foundation.
Event location: Lansdale, PA Event start: 7/27/2015 12:00:00 AM
Scientific Sessions attracts nearly 18,000 professional attendees, with a global presence from more than 100 countries. In addition to 2 million medical professionals who participated virtually in lectures and discussions about basic, translational, clinical and population science. Dates are: November 7-11, 2015
Event location: Orlando, FL Event start: 11/7/2015 12:00:00 AM
This year's Christie's Heartoberfest will be held in in Saratoga Springs, NY on September 12. Join us for great company, food and beer, diverse raffle and silent auction items, and a great family day for all.
Event location: Saratoga Springs, NY Event start: 9/12/2015 12:00:00 AM
The 2015 Jonathan R. Cowley Golf Tournmanet for the Jonathan R. Cowley Memorial Fund will be help October 5, 2015. Please save the date and join us!
Event location: Dominion Country Club 6000 Dominion Club Drive Glen Allen, VA 23059 Event start: 10/5/2015 12:00:00 AM
Please join us for a night filled with FUN and FRIENDS having a GREAT time for GREAT causes. Proceeds will support the FAA Race Salazar Memorial Fund, The FAA and the SADS Foundation.
Event location: Folsom, CA Event start: 9/11/2015 12:00:00 AM
Join the Fabulous Jack's Girls for a Bike Wash, food, fun, and music!!
Event location: Event start: 8/23/2015 12:00:00 AM
Join Scott Dailard, Rachel Flores, and Jennifer Paul for a wine tasting event in San Diego, California. The night will be full of fun and feature Dr. James Perry as a special guest for the evening. We hope to see all of you in the San Diego area! PDF Invitation
Event location: Fairbanks Highlands Estates 14142 Caminito Vistana San Diego, CA 92130 Event start: 10/23/2015 12:00:00 AM
The Annual Coconut Creek Luminary was started by the Halle Family three years ago in Ft. Myers, Florida. Neighbors gather for an evening of holiday food, fun, and cheer as well as spreading awareness and raising funds for SADS. Each family displays luminary bags that light their pathways for the holiday season.
Event location: Ft. Myers, FL Event start: 12/12/2015 12:00:00 AM
There will be a short presentation by Johns Hopkins Genetic Counselor Brittney Murray on SADS conditions, followed by informal sharing of stories. If you would like to learn more about SADS and meet families with similar conditions, please join us!
Event location: Room 140, Phipps Building, Johns Hopkins Hospital Directions: The Phipps building is easy to get to. It is on the left if you go to the 600 N. Wolfe St. entrance of the hospital (the old main entrance). On Saturdays, parking in the Washington Street Garage is free! It is a little walk to the Phipps Building. Room 140 is on the first floor. Johns Hopkins Map Event start: 11/7/2015 12:00:00 AM
The 9th Annual International SADS Foundation Conference will take place from September 30 to October 2, 2016 in San Diego, CA.
Event location: Marriott Mission Valley San Diego, CA Event start: 9/30/2016 12:00:00 AM
Wolff-Parkinson-White Syndrome and other causes of Sudden Death in the Young: the Fouad Mobassaleh Memorial Symposium
Event location: Miami Marriott Biscayne Bay Event start: 2/19/2016 12:00:00 AM
The purpose of this meeting is to provide a forum to foster an exchange of ideas and provide exposure to leaders in their respective disciplines in order to advance the field and learn new ways to improve the quality of the care we provide. We also hope to develop the careers of attendees through interactions with and mentorship from leaders and innovators in the field.
Event location: Grand Summit Hotel, Park City Mountain Resort 4000 Canyons Resort Drive, Park City, UT 84098 Hotel Website: www.parkcitymountain.com Event start: 5/13/2016 12:00:00 AM
Live music by Brian Wiltsey, graduate of Elon University 1999. Same class as mother of Lee, Mary ann Ciciarelli. All money collected at the door and through raffles will go directly to the Timothy Syndrome Alliance under the SADS Foundation.
Park Bench Bar in the Buckhead Neighborhood of Atlanta 34 Irby Avenue - Atlanta, GA
PACES - HRS Pre-Conference: Innovations in Pediatric EP 2016
Event location: Stanford University Event start: 5/3/2016 12:00:00 AM
This event will be held in the restaurant on the property called The Wetlands at the Pine Meadows Golf Course. The evening will include food from the buffet and entertainment featuring a DJ and a variety of games.
Event location: The Wetlands 319 Pine Meadow Road Lebanon, PA 17046 Event start: 4/30/2016 12:00:00 AM
John Hopkins annual ARVD/C Seminar offers a chance to meet other families affected by ARVD/C and to learn the latest advances in the field. They will have a number of Johns Hopkins faculty members presenting this year.
Event location: Chevy Chase Conference Center Auditorium Main level of Sheikh Zayed Tower 1800 Orleans Street, Baltimore, Maryland 21287 Event start: 4/30/2016 12:00:00 AM
Primary Children's Hospital and University of Utah Healthcare Department of Pediatrics Presents their 3rd Young Hearts with ICD's Conference
Event location: Marriott University Park Hotel 480 Wakara Way Salt Lake City, UT 84108 801-581-1000 Event start: 7/16/2016 12:00:00 AM
The Ryan Weidler Memorial Golf Tournament is celebrating its 11th anniversary in memory of Ryan who was lost at 26 in the summer of 2005 due to an undiagnosed SADS condition.
Event location: Norristown, PA Event start: 7/25/2016 12:00:00 AM
Always an evening of much fun, German food and beer, and many wonderful auction items to raise funds for the SADS Foundation.
Event location: Colorado Springs, CO Event start: 9/17/2016 12:00:00 AM
Christie’s Heartoberfest is an annual awareness and fundraising event with all proceeds benefiting the SADS Foundation (Sudden Arrhythmia Death Syndrome). Each year 4,000 young Americans die suddenly and unexpectedly due to cardiac arrhythmias. In 2005, one of the victims was Christie Tolosky, who died suddenly at the age of 24 from what was later diagnosed as Long QT Syndrome.
Event location: Saratoga Springs, NY Event start: 9/24/2016 12:00:00 AM
The 2016 Annual Meeting will be held in conjunction with Tufts Mecical Center on October 21-22 at the Courtyard Down Marriott on Tremont Street in Boston, Massachusetts. The agenda covers all aspects of HCM from diagnosis to the emotional management of families with HCM.
Event location: Boston, MA Event start: 10/21/2016 12:00:00 AM
Support the Jonathan R. Cowley Memorial Fund to benefit the SADS Foundation so they may spread awareness of and support families with SADS conditions.
Event location: Midlothian, VA Event start: 10/3/2016 12:00:00 AM
The SADS Foundation will be kicking off our 25th Anniversary by hosting our first new signature event Take Steps to Stop SADS on Friday evening at our 9th Annual International SADS Foundation Conference, but any of our families can hold their own Take Steps to Stop SADS event in their local community during any time of year. Contact Jan at 801-272-3023 or jan@sads.org for more information.
Event location: San Diego, CA or Your Local Community Event start: 9/30/2016 12:00:00 AM
This webinar series is designed to educate genetic counselors, physicians, and other healthcare providers about the care of families with inherited arrhythmias.
Event location: Event start: 8/3/2016 12:00:00 AM
Fourth biennial Sports Cardiology & Sudden Cardiac Arrest in the Young conference. Offering participation in lively round table discussions, for and against debates, and case based review on the effects of athletic training, the diagnosis and management of individuals with inherited cardiac diseases, and strategies to prevent sudden death in the young.
Event location: Disney's Grand Californian Hotel | Sequoia Ballroom
1600 South Disneyland Drive
Anaheim, CA 92808
Room reservations available September 1, 2016.
The SADS Foundation and John Hopkins Hospital Division of Cardiology are hosting a family support and educational meeting of Baltimore/DC area families with cardiac arrhythmias.
Event location: The meeting will be held in the Schaffer Auditorium on the main level of the Bloomberg Children's Center at 1800 Orleans Street, Balimore MD 21287. Closest parking is right across the street in the Orleans Street Garage. Click HERE for a map of the Hopkins Medical campus. Event start: 11/19/2016 12:00:00 AM
Please join us for the Inherited Arrhythmia Syndromes educational forum in partnership with the Inherited Cardiac Arrhythmia Program at Boston Children's Hospital. Sponsored by Invitae, Ambry and Medtronic, this free event is designed to bring together clinical experts to get a complete overview of different disease processes and gain an update of recent findings and new avenues of research and management.
Event location: The Joseph B. Martin Conference Center at Harvard Medical School 77 Avenue Louis Pasteur, Boston, MA Event start: 12/8/2016 12:00:00 AM
An event to honor the memories of those who have gone.
Event location: Worldwide Join the SADS Foundation for our Candle Lighting Online Event as we unite virtually OR Check Compassionate Friends' website for a local event near you. Event start: 12/9/2018 12:00:00 AM
Medical symposium discussing evolving treatments for Hypertrophic Cardiomyopathy (HCM) symptoms. The NYU Post-Graduate Medical School is accrediting this live activity for a maximum of 12.50 AMA PRA Category 1 Credits
Event location: NYU Langone Medical Center Smilow Seminar/MPR 550 First Avenue New York, NY 10016 May 6 - 7, 2017 Event start: 5/6/2017 12:00:00 AM
Patient Day is and event held to honor patients with rare diseases.
Event location: Ultragenyx, Novato, CA Event start: 4/22/2017 12:00:00 AM
Update on Inherited Arrhythmias: Recent Advancements in Therapies and Diagnosis--From 8:15 am to 2:00 pm.
Event location: NYU Langone Health 435 East 30th Street New York, NY 10016 Event start: 4/14/2018 12:00:00 AM
Forum on Practice Innovation, Scientific Achievement, and Career Advancement for Pediatric and Adult Congenital Electrophysiology.
Event location: Flordia Hospital Nicholson Center Celebration Health Location 404 Celebration Place Celebration, FL 34747 February 20 - 21, 2017 Event start: 2/20/2017 12:00:00 AM
Throughout the month of February, the Clark Family’s goal is to help increase awareness and raise funds for the SADS Foundation, so they can continue to research, educate, and provide support for families dealing with these genetic heart conditions. For the full story, please visit www.crowdrise.com/keep-little-hearts-beating.
Event location: Kansas City, MO Event start: 2/1/2017 12:00:00 AM
Jeannie will be guest bartending and serving up her best cocktail concoctions during the celebration of the 8th Annual Guys & Girls Night Out! All tips from the drink purchases will benefit SADS Foundation in memory of Jeannie's niece, Rebecca Righeimer.
Event location: Glencoe, IL Event start: 2/23/2017 12:00:00 AM
A shopping evening at Charming Charlies with 100% of the proceeds to benefit the SADS Foundation hosted by Rhonda Nickelson in memory of her aunt who passed away from WPW.
Event location: Bowie, MD Event start: 2/26/2017 12:00:00 AM
This is an annual charity 5k event to commemorate Dr. Mikhail Gertsberg, a respected radiology resident at Hartford Hospital, who suddenly passed away last year. Proceeds from this event will support the Sudden Arrhythmia Death Syndromes Foundation.
Event location: Farmington, CT Event start: 5/21/2017 12:00:00 AM
Jumpathon is one of the longest running and most successful fund-raisers for the SADS Foundation and this year marks it 20th Anniversary.
Event location: Dallas, TX Event start: 2/14/2017 12:00:00 AM
Livestream to the Legistrative Conference for those unable to attend in-person.
Event location: Online Event start: 2/28/2017 12:00:00 AM
A night of LuLaRoe shopping to benefit the SADS Foundation
Event location: www.facebook.com/groups/LuLaRoeNicoleMarieMitchell Event start: 3/23/2017 12:00:00 AM
CME course on the important role of genetics, genomics, and pharmacogenetics in the diagnosis, risk stratification, and treatment of diseases affecting the heart and the blood vessels.
Event location: Francis Marion Hotel, Charleston, SC Event start: 10/6/2017 12:00:00 AM
Join us for the SADS Foundation's 1st family webinar!
Event location: Online Event start: 4/18/2017 12:00:00 AM
A Family Support Family Picnic in the Baltimore/DC Area.
Event location: Alpha Ridge Park - Pavilion 1 11685 Old Frederick Road/Md 99 Marriottsville, MD 21104 Event start: 6/10/2017 12:00:00 AM
Please join the O'Donnell, Weidler, and Speece Families for golf, wine and beer, dinner, and fun in support of research, the SADS Foundation, and CHOP Youth Heart Watch, an affiliate of Project ADAM.
Event location: Bluestone Country Club 711 Boehms Church Road Blue Bell, PA 19422 Event start: 7/1/2019 12:00:00 AM
A race/walk to celebrate the life of Ian Hyzy with proceeds benefiting The SADS Foundation and Parent Heart Watch.
Event location: Delaware Park, Buffalo NY Meadow Drive (Ring Road) 84 Parkside Ave. Buffalo, NY 14214 Event start: 9/30/2017 12:00:00 AM
The 4th Annual 5k and 10k run that will take place on scenic roads and the farm. The 1 mile walk will take place on the farm with family activities along the way. This race is in memory of Rachel Lancour who died in her sleep May 20, 2015 and was a victim of Long QT Syndrome.
Event location: 2713 Hayner Road Janesville, WI US 53548 Event start: 10/5/2019 12:00:00 AM
Food, fun, beer German Style!
Event location: 3225 Brenner Place Colorado Springs, CO 80917 Phone: 719-596-3710 Event start: 9/16/2017 12:00:00 AM
The SADS Foundation's 11th Annual International Conference.
Ann Arbor, MI
Christie’s Heartoberfest is an annual awareness and fundraising event with all proceeds benefiting the SADS Foundation (Sudden Arrhythmia Death Syndromes).
Event location: Saratoga Springs, NY Event start: 10/7/2017 12:00:00 AM
The Petersen Family will be cooling off neighbors with glasses of lemonade in Carol Stream. Drop by and share a drink, buy a SADS wristband, learn about SADS conditions, and enjoy a beautiful summer day in the park. All proceeds will benefit the SADS Foundation.
Event location: Carol Stream, Illinois Event start: 7/1/2019 12:00:00 AM
The Comprehensive Genetic Arrhythmia Program at the University of California at San Francisco (UCSF) invites you to join us for a one-day educational seminar on topics focusing on inherited heart rhythm disorders and cardiomyopathies.
Event location: Cole Hall at UCSF 513 Parnassus Avenue Event start: 1/20/2018 12:00:00 AM
This conference is a wonderful opportunity to empower yourself to make a difference in your community to save young lives from SCA. You will have the chance to learn from the experts, discuss heart screenings, AED placement, legislation, and much more.
Event location: Savannah Marriott Riverfront Savannah, Georgia Event start: 1/12/2018 12:00:00 AM
Event held from 9:00 AM-2:00 PM. Family support and education meeting. An event for families with arrhythmia conditions. Attendance is free, breakfast and lunch provided.
Event location: North Laurel Community Center 9411 Whiskey Bottom Road Laurel, MD 20723 Event start: 4/7/2018 12:00:00 AM
Children's National Medical Center 111 Michigan Avenue NW Washington, DC 20010
Sudden Cardiac Death Awareness & Prevention - A Primer for Pediatricians, Pediatric Residents, and Advanced Nurse Practitioners
Event location: Inova Fairfax Children's Hospital Event start: 4/28/2018 12:00:00 AM
Cardiac Arrhythmia, Sudden Death, Inherited Cardiovascular Disease, Athletes
Event location: Paul Brest Hall - Munger Bldg 4 555 Salvatierra Walk Stanford, CA 94305 Event start: 6/21/2018 12:00:00 AM
Each year this fun event is held to raise money, gather friends, and most importantly, remember Jon. The proceeds of the golf tournament go to raising money for SADS research among other things. To find out more about, Jon, SADS or the Jonathan R.Cowley Memorial Foundation, visit www.sads.org/healing-wall-entries/Jonathan-R--Cowley. 2018 Date of Event is still being determined.
Event location: Glen Allen, Virginia Event start: 10/1/2018 12:00:00 AM
Allison was such a kind hearted person, always willing to help others. She lived life to the fullest, always having fun, smiling & making us laugh. There is no better way to honor her and keep her memory alive than to share our memories, have a great time and raise money along the way.
Event location: Ellison Park Moretti's 6727 North Olmsted Chicago, IL Event start: 10/20/2018 12:00:00 AM
A dinner for health care providers to be held during the 2018 HRS Sessions.
Event location: Morton's Steakhouse 2 Seaport Lane Boston, Mass Event start: 5/10/2018 12:00:00 AM
Join in the fun at the Rob Kaas Memorial Golf Tournament. Activities will include a Skins Game, Closest to Pins Contest, Low Gross, and Net Big Raffle. All proceeds benefit the SADS Foundation and its services to the SADS community and improving care and treatment of SADS conditions.
Event location: Costa Mesa CC - Los Lagos Course Event start: 6/29/2018 12:00:00 AM
Arrhythmia's in Children & Adults
Event location: Register HERE Event start: 6/5/2018 12:00:00 AM
Where can you have stellar beer, out of this world food, AND learn about space? At the Space Foundation's inaugural ROCKETOBERFEST!
Event location: Space Foundation Discovery Center, Colorado Srpings, CO Event start: 9/15/2018 12:00:00 AM
Join SADS families from 11 a.m. to 2 p.m. for a backyard picnic full of great food and great company.
Event location: Event start: 9/29/2018 12:00:00 AM
This swim meet has been organized by the members of Great Lakes Sailfish swim team to remember and honor Stevie Grieshammer who loved swimming competitively with the team. He was a great teammate who encouraged all to work hard and be the best swimmer they could be.
Event location: Robert F. Busbey Natatorium, Cleveland State University 2451 Euclid Avenue Cleveland, OH 44115 Event start: 10/1/2019 12:00:00 AM
St. Andrews' School will host a HIGH SCHOOL BOYS AND GIRLS tournament on December 20-22, 2018, featuring St.Andrews', Habersham, Bethesda, and St. Vincents'. teams. Funds will be raised for the Fellowship of Christian Athletes and Sudden Arrythmia Death Syndromes Foundation. Get your shopping done and plan to come and see some great basketball on Wilmington Island soon!
Event location: Savannah, Georgia Event start: 12/20/2018 12:00:00 AM
The Heart Rhythm Society’s 40th Annual Scientific Sessions, May 8-11, 2019, at the Moscone Center, San Francisco, USA will convene the finest clinicians, scientists, researchers and innovators in the field of cardiac pacing and electrophysiology. HRS Annual Scientific Sessions designed to meet the continuing medical educational needs of the heart rhythm specialist. The focus of Heart Rhythm 2019 showcases the ideas, people, and technology that continue to propel our field forward with sessions that represented all aspects of pacing, defibrillation, clinical arrhythmia management, ablation, pharmacology, genetics, basic science, and health policy.
Event location: San Francisco, CA Event start: 5/8/2019 12:00:00 AM
Participate in an afternoon full of food, drink, and family friendly fun. Expect games, raffles, face paint, and more! Admission is free! Proceeds from beer, food, apparel and raffle ticket purchases will be donated to the SADS Foundation in memory of Kathleen Formica Neal and in honor of Alanna Kathleen Mundondo (living & thriving with LQTS)!
Event location: Event start: 5/11/2019 12:00:00 AM
Welcome to the Mike Gertsberg Memorial 5K. This is the 3rd running of an annual charity 5K held in honor of the memory of Dr. Mikhail Gerstberg, a respected and beloved Radiology Resident at Hartford Hospital who passed away suddenly in 2016. Every year we gather in remembrance of our lost colleague and friend who touched the lives of countless people in his short time on this Earth. All proceeds are donated directly to the Sudden Arrhythmia Death Syndromes Foundation to further fund research to better understand sudden cardiac death. Last year we raised $4,193.
Event location: 50 Winding Trails Drive Farmington, CT 06032 Event start: 5/19/2019 12:00:00 AM
Event location: Costa Mesa, CA Event start: 6/1/2019 12:00:00 AM
The AHA Scientific Sessions serve the latest cutting-edge science and education for those in the fields of cardiovascular clinical, population, or basic science. Programming has a clinical focus on Saturday and Sunday and basic science focus on Sunday and Monday. The scope and quality of the scientific programming make Scientific Sessions the premier cardiovascular research and instructional meeting in the world with over 1,000 invited speakers of the world’s top leaders in the areas of cardiovascular disease.
Event location: Philadelphia, PA Event start: 11/16/2019 12:00:00 AM
For his Eagle Project, Kaleb Echols is holding a 5K to raise awareness about SADS conditions and funds for the SADS Foundation. His family has two types of Long QT and has been active with the SADS Foundation for many years.
Event location: Jay C. Hormel Nature Center - Austin, Minnesota Event start: 6/22/2019 12:00:00 AM
This family friendly event will start at 1 p.m. with no admission charge has something for everyone: food and drinks, kids and adult door prizes, dozens of raffle items and more added continuously. Funds from raffle sales and donations support awareness efforts for cardiac arrhythmia conditions especially in young people. 400,000 people die in the U.S. annually from sudden cardiac arrest and in 2005, one of them was our Christie Tolosky. Help raise awareness so no other family has to lose their Christie.
Event location: Saratoga Spa State Park Saratoga Springs, New York Event start: 9/28/2019 12:00:00 AM