Valiant Hearts with Rhythm Celebration

In honor of our brave little boy, Cache, who is turning five this year, we are partnering up with Chili's and the SADS Foundation (Sudden Arrhythmia Death Syndromes) to raise money and awareness of Long QT syndrome for his fifth birthday. Chili's, in Midvale Utah, will be hosting one night on May 18, 2010 and 10% of all sales will go to the SADS Foundation to help raise awareness and save lives. We ask that all of you join us in celebration of Cache's life and so many others that live and thrive with Long QT. We could not think or ask for a better present for Cache. For those of you that will not be able to attend the fundraiser, we have set up a special page where you are able to go and donate in honor of Cache's birthday. http://www.firstgiving.com/melissamiller6 Please invite all your friends and family to come out and have a great dinner which will benefit so many. Please be sure to print the Chili's flyer or mention it to your waiter/waitress so that your do nation will be counted. To learn more about Long QT and other SADS conditions please visit www.stopsads.org.

Cache is an amazing brave child! We call him our life saver and hero. I can not begin to describe how much this child has and will endure in his lifetime. Cache was born at 37 weeks, 7 pounds 14 ounces, 19.5 inches long, and came out fighting.

When I was 32 weeks along ,  his heart rate had dropped dangerously low. After many tests and a big scare they decided that he could be monitored for a few weeks until he was ready enter our world. When I was 36 weeks they decided to induce me. They knew something was wrong with his little heart, but they were not sure what. Less then 12 hours after birth he was being transferred to the pediatric hospital, and I was being discharged. When we arrived at the hospital we were told that my son had a genetic heart condition called Long QT.  In order  for him to be on the medication to save his life, he needed a pacemaker. Three days after birth, my son was going in to have open heart surgery. A few days later his heart began to reject his pacemaker and they had to go in again and drain the fluid building up around his heart. My superman made it though the first month of his life in the NICU and was soon able to come home. This is where his journey had begun.

Cache has two genetic dispositions of Long QT. Long QT1 and Jervell Lang-Nielsen syndrome. When Cache was 2.5 years old he was diagnosed with sever e  to profound deafness. This is a side effect from the Jervell Lang-Nielsen syndrome. Although his ability to speak is a challenge for him, he does not let anything stop him from living his life.

In July 2008, Cache had a deadly arrhythmia, but we were blessed by angels and his heart bounced back. In November 2008, another surgery was performed to place a defibrillator and have a sympathectomy performed. He did well and has never had another arrhythmia since.
 
In February 2010, his defibrillator had become infected. After a week in the hospital and 2 heart surgeries later, he is back to his active, fun little boy, self.
Although his trials have been great he is an amazing and brave child. Due to his many trails in life, we had discovered that not only he has this genetic heart condition, but his brother, sister, uncle, and cousins all live with Long QT. Without his trials, we would have never know about this silent killer, and they could have died. We are very blessed to have our strong, courageous boy.
 

 
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