Welcome to the new SADS site.
Click Here
to report any problems.
SADS Foundation USA
SADS Foundation Canada
SADS Foundation UK
SADS Foundation Netherlands
SADS Foundation China
SADS Foundation Hong Kong
Search for:
Log in
Supporting Families.
Saving Lives.
Sign-up for our
Enewsletter
here
.
SADS International
SADS Channel Blog
About Us
Contact Us
Library
Advocacy
Schools
Medical Professionals
Get Involved
Living with SADS
Research
Home
|
healing wall entries
|
Lisa Havens
SADS Foundation:Sudden Arrhythmia Death Syndromes Foundation
Fund in Memory of
Lisa Havens
Donate Now
Living Well with Long QT. I was diagnosed with Long QT 34 years ago. In 1974, both my father and I were diagnosed with Long QT. I was only 7 years old. The information that was given to my parents was slim, but it kept me alive. Take beta-blockers daily and don't participate in competitive sports.
My heart aches every time I read someone's story of loss due to Long QT. My parents suffered the loss of a son less than a year before my birth. Evidence suggests that he died of Long QT. I worried that I too would loose a child to Long QT but the advances in research and treatment give me hope and peace of mind.
As each of my children were born, they were checked for Long QT. I only have one child that shares my condition of Long QT. My son Daniel was diagnosed as a newborn and has been under the care of a pediatric cardiologist ever since. He will soon be 8 years old and has an endless supply of energy.
As each of my children were born, they were checked for Long QT. I only have one child that shares my condition of Long QT. My son Daniel was diagnosed as a newborn and has been under the care of a pediatric cardiologist ever since. He will soon be 8 years old and has an endless supply of energy.
The information about Long QT has increased since I was a child. Danie's cardiologist has always given me clear, understandable information that makes much more sense than what I was told as a youth. Daniel may not be crazy about the fact that he can't join swim team with his sisters but I am grateful to have him alive every day.
I often share my knowledge of Long QT with friends and my children's schools. Unfortunately, people think it sounds like something that would afflict someone else's family and not their own.
My parents rejoice in the knowledge that I am healthy and that my son and his future children have access to medical care that will help them have long healthy lives. I am very grateful for all the doctors who have used their time and talents to further understand and treat Long QT.
Return to Page
Fill Out Information Below:
*First Name:
*Last Name:
*Email address:
Your Gift:
One-Time Gift
Monthly Gift
Amount of monthly donation:
On this date each month:
I would like to make a one-time donation of $:
Reason for Giving:
General SADS Donation
No Ball at All
Timothy Syndrome Alliance
Giving to Event (please specific):
I'm donating:
In memory of
In honor of
Name:
Send Acknowledgement (without mentioning amount) to:
Address:
Special Notes:
*I would like to receive enewsletters and updates:
Yes
No
Continue to the following secure page to add your credit card information.
*Indicates a required field.
Home
Healing Wall
Donate Now
Whats New
SADSConnect
TSA
Donate
About Us
Advocacy
International Partners
Schools
Dropbox
Medical Professionals
Get Involved
Library
Living with SADS
MatReqTest
Medical Professional Education
Research
Paypal Success
Paypal Failure
Thank you for your donation!
Volunteer to Fight SADS!
Overview of SADS Conditions
Online Community
SADS Online Support Community
Share Your Story
Stories: Living & Thriving with SADS
Stories: Forever in our Hearts
Enews Archives & Sign up
Find it Fast
Family Registration
Find a Physician
International SADS
Request Materials
Risk Assessment
Genetic Testing
Our Partners
Warning Signs
Family history of unexpected, unexplained sudden death under age 40.
Fainting or seizure during exercise, excitement or startle.
Consistent or unusual chest pain &/or shortness of breath during exercise.