Welcome to the new SADS site.
Click Here
to report any problems.
SADS Foundation USA
SADS Foundation Canada
SADS Foundation UK
SADS Foundation Netherlands
SADS Foundation China
SADS Foundation Hong Kong
Search for:
Log in
Supporting Families.
Saving Lives.
SADS International
SADS Blog
About Us
Contact Us
Library
Advocacy
Schools
Medical Professionals
Get Involved
Living with SADS
Research
Home
|
Living and Thriving with SADS
Stories: Living & Thriving with SADS
Click here to share a story
Aimmy Tse
When I was 11 years old, I passed out in school. I was taken to the emergency room and many tests were done. The doctors were suspecting that it was my brain but after many tests everything was normal. I went back to my normal activities. When I was 13 years old, I had a seizure when I was running in gym class and I went to the emergency room again. The doctors said since I already went through the testing for my brain and it was normal, it was probably my heart. After going through EKG, echo, 2...
see more
Alec Brennan Verwey
I really wanted to tell my son's story.. A prefectly healthy, happy 14 year old.. Until the fainting started. ...
see more
Amber Stout
My name is Amber and I am 25 years old. I am happily married and have 2 kids. My son, Corbyn, is 3 and I have a 3 month old girl, Kinley. They bring such joy to my life and I love them dearly. I cannot imagine what my life would be like without them. That is why I think it is important to share my story....
see more
Amy Manning
Living with Long QT. I was diagnosed with Long QT Syndrome, during February 2008, when I was 15. ...
see more
Amy Robertson
On 9-10-11, I gave birth to a beautiful 5lb 12oz baby girl. I chose the name Katie for her. When Katie was 6 weeks old I took her to the local hospital for a little trouble breathing. She stayed the night there for observation. After a quite night, the doctor came in and said he thought she was fine but was going to send her to Lubbock 'just in case'. I was quite confused by this but agreed. Katie slept through the 1 1/2 hour ambulance ride. Once we arrived, we were taken to the children's floor...
see more
Andy Golden
My name is Andy. I am 51 years old and have been living with ICDs since 1998 and am currently on #4 (the last three have each lasted 4 years). I have a long history of heart issues. I was born with Tetralogy of Fallot, a common congenital heart defect, had it corrected in 1965, and had a pretty normal childhood. I ended up with another repair in 1975. High school, college, and grad school went smoothly until I developed Atrial Fibrillation (A Fib) in the late 1980s. A Fib is a pretty harml...
see more
Audrey Claire Koch
Audrey Claire Koch is our precious, smiling daughter, and we are amazingly blessed to have her alive with us today! This is her story – up until today, when she is 19 months old, living and thriving with Long QT Syndrome! In April of 2010, we were excitedly 20 months pregnant, with our third child. At 39 years old, I was used to the doctor appointment schedule including the routine Perinatal visit, in addition to all the regular OB appointments. At the 20 week Perinatal appointment, our li...
see more
Becky Rose
Our journey started when my 12 year old (now 13) son was having bouts of passing out. He had been treated for a concussion from football where he was the quarterback at the time. On one particular morning he passed out from, of all things, my blender. After a call to the doctor Dylan was immediately sent for an EKG. We got results the very next day that Dylan had a "prolonged" QT interval. Whatever that was. After months of trying to find a doctor with knowledge of this we ended up in the ER aft...
see more
Bella Flores
How it all began: Our daughter has been diagnosed with CPVT! Our story starts approx. 3 years ago, July 20th 2012…we went to SeaWorld, and Isabella ( 7 yrs. old) wanted to ride the new roller coaster…honoring her bravery we did it. Approx. 3 seconds into the ride she 'passed-out'. She remained unconscious the entire ride. I carried her off the coaster, laid her down, and to our good fortune she woke within seconds. Alert, oriented, and crying. The next event happened approx. 3 weeks later. She w...
see more
Benjamin Anderson
Our 11 year old son Benjamin was born with the heart defect Transposition of the great arteries, and had open heart surgery at 5 days old. We were told that he could never play contact sports but could lead a normal life otherwise. He had been followed closely by cardiologists. Benjamin had been doing great. He started 6th grade and was loving school. We had signed our 4 children up for swim lesson like we often in the fall. This is when Benjamin experienced sudden death syndrome....
see more
Brayden Anthony Tambone
Brayden is a loveable boy who was born with a heart condition called Long QT 1. We talk to Brayden openly about what he has and what he is limited in doing. In Brayden’s world he knows he has a heart condition that he takes medication for two times a day. He is aware that he can’t play any competitive sports. ...
see more
Bridget McGaughey
First I would like to take the time to say thank you to Kaiser Permanente, my cardiologist Dr. Schnitzer and Corinne Zemliak for putting together this ICD support group here in Woodland Hills. Community and the chance to fellowship with other ICD patients is a great opportunity to connect, and for that I thank you. My story with my ICD started on October 4th, 2012. I woke up on a lovely early Fall day, expecting it to be a typical day like the rest. The leaves in Southern California were t...
see more
Displaying results 1-12 (of 101)
|<
<
1
-
2
-
3
-
4
-
5
-
6
-
7
-
8
-
9
>
>|
TSA
Donate
About Us
Advocacy
International Partners
Schools
Dropbox
Medical Professionals
Get Involved
Library
Living with SADS
MatReqTest
Medical Professional Education
News
photo galleries
Press Room
Research
SADS Int'l Conference
Paypal Success
Paypal Failure
Thank you for your donation!
Volunteer to Fight SADS!
Overview of SADS Conditions
Online Community
SADS Online Support Community
SADSConnect for Youth
Share Your Story
Stories: Living & Thriving with SADS
Stories: Forever in our Hearts
Enews Archives & Sign up
Find it Fast
About Me & Request Materials
Find a Physician
International SADS
Risk Assessment
Genetic Testing
Our Partners
Warning Signs
Family history of unexpected, unexplained sudden death under age 40.
Fainting or seizure during exercise, excitement or startle.
Consistent or unusual chest pain &/or shortness of breath during exercise.