Stories: Forever in our Hearts

My name is Mauricio Aupart, Mexican and father of Martina Aupart. On March 20th last year she died at the age of seven years old of sudden arrhythmia death syndrome. Martina was 5 years old when she started having blackouts when she was exercising. There were occasions in which she fainted but 2 minutes later she was back again running and playing. We took her to a pediatric cardiologist who diagnosed her with dysauthonomy. We also saw a Neurologist who told us our little girl was in perf... see more

My daughter Mary was a happy, healthy 8 ½ year old. She was in second grade and very involved in school and church. She loved reading and helping her friends and teachers in any way possible. Mary played soccer, baseball, sang in the church choir, and played in the church bell choir. She was also a very talented artist. She loved to draw and paint, and had been to art camp for the first time the previous summer. ... see more

It was a typical Valentines day 2/14/11. Nothing unusual. Was seemingly going to be a nice valentines day. Mayda had bought the usual treats for her teenage daughter and young son. I surprised her in the afternoon with a delivery of fruit flowers to her job around 230 the afternoon of 2/14. after completing her shift at 530pm that day, Mayda was supposed to go with A family member to workout at 7pm. She then sent a text at 620pm after arriving home telling her cousin that she all of a sudden was... see more

Shelly was the most caring, energetic, loving person I ever knew. Living life to the fullest was important to her. Her diagnosis of LQT Syndrome came when she was12. When we initially began seeking treatment, it was with an adult cardiologist, that really didn't take time to answer my questions. Shelly was put on beta-blockers, which seemed to help most of her symptoms, for a while. I decided that I needed a doctor who could answer our questions and provide treatment, we chose a pediatric cardio... see more

Nikki was a loving mother, fiancé, daughter, sister, and friend loved by anyone who had the privilege to meet her. She was blissfully happy with hopes of planning her wedding and buying her new home. Things changed late one fall evening, she was cooking dinner and suddenly fainted and was rushed to the hospital. Upon assessment lab work and tests, the doctor reassured everything was normal and was sent home. Befoe discharge upon review of her EKG by the cardiologist, a long QT interval was detec... see more

On April 22, 2004, my life was changed forever. Olivia, my one and only daughter, died at the age of 14 of sudden cardiac arrest. Olivia was the perfect picture of health, so I thought. She was involved in sports and cheer leading. She was very active, ate right and got the right amount of sleep, for someone her age. Little did I know that inside her was lurking a deadly gene. It's a heart rhythm abnormality that, if left untreated or not treated properly, can cause seizures and sudden c... see more

Princess George was born at home in the early morning hours of January 5, 2006. She was delivered by her father Carlos Balma Jr. with the help of her big sister Pheonix Vidal, while brothers Ray Vidal & Joaquin Balma and sister Shai Vidal watched. George was an active little girl who loved and was loved by everyone. She was known for her bright smile and hugs that could knock you over. She had a great sense of humor that always brought laughter to our days. As the youngest of five children, she ... see more

Race’s story~ I am writing this story not because our son is any more extraordinary than any other child God loans us but because his life ended suddenly and through it all there is very significant message to share. ... see more

Lene’s (Rebecca's mom) journey began on December 27, 2003. Her family, consisting of herself, her husband Jim, and their daughters Rebecca (4) and Morgan (2) had been celebrating Christmas with their extended family members. The little girls were very excited! ... see more

My beautiful son Ricky was in first grade, he had a pacemaker implanted June 6, 2006 and he died January 20, 2007. He was diagnosed with LQTS when he was 4 and passed out on a daily basis. ... see more

He came into the world as a complete surprise and unexpected miracle on January 28, 1977. “He was the greatest gift I’ve ever received in my life, says his mom, Jaclynn Vines. Born of her heart, Rob came to our family through the selflessness of a beautiful adoption. Rob was a cherished member of our family from the moment of his birth. He was sealed to us when he was 6 months old.... see more

I am Brugada Girl. My father fell victim to Brugada Syndrome at the age of 55. One day in May he sat down in a chair in his back yard after a long day at work, and never woke up again. Cardiac arrest was listed as cause of death. Post mortem, and after my own diagnosis of Brugada Syndrome, it is believed Brugada Syndrome claimed his life without warning. He was full of life, healthy, a father of 2, a holy man. With pep in his step and endless telling of jokes, he was a joy to be around. It was d... see more