From: Olivia Daubin []
Sent: Friday, February 27, 2009 10:29 AM
Subject: Awareness Month 08
SADS logo
SADS Awareness Month 2008

Create SADS Safe Communities

Contact Us
508 E. South Temple, Suite 20
Salt Lake City, Utah 84102

We are now part of the 2008 National Combined Federal Campaign (CF.C) Charity List-so all yo.u federal employees (& all your friends) can now donate directly to SADS through your workplace campaign.

CFC Charity #56112
for details.

SADS needs your help!

The CFC Campaigns across the country are a great way to make a whole new audience of federal workers (post office, military, etc.) aware of the warning signs.

To volunteer (or for more info), contact Joanne or 1-800-Stop SAD.

Dear (Contact First Name),

SADS Awareness Month is under way, kids are back in school and the smell of newly sharpened pencils is in the air!  Here at the SADS Foundation we thought this would be a good time to check in with our parents and volunteers.

As you know, part of this month's focus is to provide SADS Safe Schools for all of our kids and our new School Checklist is a great step-by-step guide to making that happen.

We'd love to hear from you!  Have you talked with your school principal yet?  How many SADS kids now have Care Plans in place at their schools?  It's never too late to get started and we want your state to be involved!

If you've completed the School Checklist, it's tiime to move on to the rest of your community. Do your kids participate in after-school activities?  Do the Emergency Room's in your area know what Long QT is should your child have an accident?  Now that your schools are safe, SADS Awarenesss Month is also a great opportunity to expand your outreach beyond your schools and out into your communities.  Below is a list of ideas about where to begin!
Expand your outreach!  Here's how...

  1. Distribute SADS materials (packets and posters) in your community's schools, recreation centers, Boys and Girls Clubs, your local Y.M.C.A and Y.W.C.A's, and/or to any after-school activity in which your child is involved.
  2. Visit the Emergency Rooms in your area, distribute materials and make sure they understand and are prepared to care for your child's condition.
  3. Alert the media!  If your family has LQT (or another SADS condition) tell your story to the media. You can use our Media Kit and Media Tips to prepare, (email Olivia for information and materials).
  4. Give a personal gift or organize a fundraiser to help cover the costs of materials and outreach and to promote awareness in the community.
Take lots and lots of pictures and keep us posted!  We want to hear all about it!  Your stories inspire and help others!

New Awareness Opportunity!
Volunteer for a CFC Campaign event in your community

Educate federal employees about SADS conditions by participating in a CFC event in your area. For the first time SADS has been accepted as part of the National Federal Employee's Charitable Giving Campaign. There will be Kick Off events all over the nation in September and October for all federal employees.

Help us educate federal employees about heart arrythmias while raising money to save lives.  Kick off activities vary but you can start by simply handing our materials at a fair. Contact Joanne Robinson or call 1-800-786-7723 for more information.

As you can see there's a lot to do this month and there are all kinds of opportunities to spread the word about SADS in our schools and communities.  We want to help you get involved!  Check out our website,, for information and materials or give us a call (1-800-STOP SAD).  With your help, we can create SADS Safe Schools in every state and make our communities safer for those with SADS condtions.
Olivia Daubin
SADS Foundation

CME Credit
SADS Foundation partners with Project S.A.V.E.

Working together to educate primary care providers and to prevent pediatric sudden cardiac death.

Check out the newest webcast series on the prevention of pediatric sudden cardiac death. Presented by Robert Campbell, M.D. and provided by Project S.A.V.E. and the Children's Healthcare of Atlanta. Visit to register for and watch the two on-demand Webcasts. One hour of CME credit and one GNA contact hour is offered if both webcasts are viewed and the post test is taken.

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SADS Foundation | 508 E. South Temple, Suite 20 | Salt Lake City | UT | 84102

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