Supporting Families. Saving Lives.
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SADS conditions are treatable, but only if the person affected is diagnosed. Encourage your family members to get screened as soon as possible; if you or a family member need help finding a heart rhythm specialist, you can contact SADS@SADS.org for a physician referral in your area. If anyone in your family is displaying SADS symptoms (fainting or near fainting, seizures, or palpitations), they should be screened immediately. Even if a family member doesn’t have symptoms, they should still be screened – a large percentage of SADS individuals never have any symptoms, but are still at risk and can pass the gene on to their children. You could be your family’s guardian angel! It can be hard to know how to start conversations about SADS, especially with family members you aren’t regularly in contact with. If you haven’t told everyone in your extended family about you or your child’s condition, we have some points below that you can email to help start the conversation. We’re also happy to contact family members for you and answer any questions directly.
I have been diagnosed with a cardiac condition that puts me at an increased risk of developing an arrhythmia that could lead to sudden death if I don’t treat it.
My condition is treatable, and I have access to top experts to help keep me safe. But knowledge is power.
Contact SADS to access their network of physicians who specialize in these conditions and can help you find a doctor or access screening local to you.