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Home | Living with SADS | Family Pedigree | Family Health History Month

Get Your Family Health History Kit Today!

Take advantage of the holidays and this special time with family to gather information from your relatives about your medical history. Getting your family's health history is as simple as talking about it, writing it down, and then sharing it. SADS conditions are usually inherited by autosomal dominant transmission, which means that half of the members of your family could have the gene that causes a SADS condition.

The number one warning sign of SADS is a family history of unexpected, unexplained sudden death of a young person under the age of 40. Deaths from drowning, single car accidents or even babies who die from SIDS may also be SADS related.

Not everyone who has the same gene will express the same symptoms. One person can have absolutely no symptoms, but their child with the same gene could have many symptoms. This is why tracing your family pedigree is crucial to saving lives. Learn more about the SADS Pedigree Project HERE.

Click here to download and print the materials from the Pedigree Kit on our website. Take the kit with you when you see your family this holiday season!

1. First, fill out the Family Members to Contact list by entering the names of relatives, living or deceased. Use this list as a guide to help you know who to contact for more information.

2. Next, complete a Short Questionnaire and make sure you are informed about SADS conditions. You have to start with yourself first!

3. Then contact other family members to get their information (we have a Family Notification Letter for you to use) and email or hand them the letter.

4. Make sure this data gets back to the SADS Foundation by calling us at 801-272-3023, or scanning the information and emailing it to Marcia@sads.org.

We hope you have a wonderful holiday season!

If you would like help getting started please feel free to contact Marcia Baker, Program Director at Marcia@sads.org or 801-214-675-5577.

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Warning Signs
- Family history of unexpected, unexplained sudden death under age 40.
- Fainting or seizure during exercise, excitement or startle.
- Consistent or unusual chest pain &/or shortness of breath during exercise.

Get Your Family Health History Kit Today!

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Find it Fast

Warning Signs