Supporting Families. Saving Lives.
This kit provides valuable tools to help you organize the process of notifying and gathering information from your relatives.This will help identify family members who need to be screened and could save a life. We hope you will encourage all of your relatives to connect with the SADS Foundation for help and support!
First, fill out the Family Members to Contact list by entering the names of relatives, living or deceased. Use this list as a guide to help you know who to contact for more information.
Next, complete a Short Questionnaire and make sure you are informed about SADS conditions. You have to start with yourself first!
Then contact other family members to get their information (we have a Family Notification Letter for you to use) and email or hand them the letter.
Make sure this data gets back to the SADS Foundation by calling us at 801-272-3023, faxing the forms to 801-505-0282, or scanning the information and emailing it to Marcia@sads.org.
Cover Letter: Background information about the SADS Pedigree Project
Instructions: How to use the kit and gather your family health history
Family Members to Contact: A form to organize your family members and plan who to contact
Short Questionnaire: A form to collect symptoms and diagnosis information to add to your family tree
Short Questionnaire: A form for your extended family members, to collect their information
Family Notification Letter: We've included a sample letter that you can send to family members to inform them about SADS conditions.
To request a hard copy of the pedigree kit to be mailed to you, please contact mikayla@sads.org.