If you have experienced the loss of a loved one, please know how sorry we are for your loss. And please contact us----we can help in the following ways:

• Help you navigate the process to determine a cause of death and help other family members obtain screening.

• Provide a list of grief resources.

• Offer our availability to speak (or email) with you to provide assistance with any questions or issues you may have.

• Offer the support of a family who has also experienced the loss of a family member from a SADS related condition.

• Offer our assistance to help you create a beautiful memorial page in memory of your loved one. This will also establish a memorial fund that will support the continuing work of the SADS Foundation.

The first steps we recommend are:

• Contact the Medical Examiner ASAP to find out if they have saved the appropriate tissue and blood samples; more information can be found here:

• Postmortem DNA Banking and Genetic Testing: Information for Families
• What samples should be saved
• When a Family Member Dies Suddenly 

• Get the parents, siblings, and children (if applicable) of your loved one screened for SADS conditions by a specialist (a cardiac electrophysiologist).

• If none of the living family members are identified as having a SADS condition you may consider genetic testing and DNA Banking to preserve a sample of DNA for future testing.

Genetic Testing Companies:

Ambry Genetics
www.ambrygen.com
For post-mortem testing, have a physician (the Medical Examiner or your doctor) or a genetic counselor call Ambry Client Services at 949-900-5500 to determine the appropriate genetic tests and to order the genetic testing kit. If insurance coverage is denied or is not an option, Ambry offers reduced pricing for post-mortem genetic testing.

Blueprint Genetics
www.blueprintgenetics.com
Customer Support 650-452-9340

Gene Dx
www.genedx.com
301-519-2100

Invitae
www.invitae.com
Testing inquiries 415-374-7782

For DNA Banking:

Prevention Genetics
www.preventiongenetics.com
715-387-0484

Resources:

• Medical Examiner/Coroner Kit

• Post Mortem Genetic Testing