Supporting Families. Saving Lives.
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Read the latest about SADS conditions: news on promising treatments, legislation, updates on the foundation and its events, and people living and thriving with SADS conditions.
Kids Save Stranger's Baby with CPR
Two young kids use CPR they learned in school to save the life of a stranger's baby who suddenly stopped breathing.
HOPE (Hands On Practical Experience)
Alice Lara, President and CEO of the SADS Foundation attends the HOPE (Hands On Practical Experience) training at Pickerington High School Central. Over 450 10th graders were trained by the new CPR program developed at Fairfield Medical Center.
ICD's and Magnets
14 y/o girl's Science Fair project reminds us to follow the manufacturer's recommendation and keep magnets away from your ICD.
New Updates Made to the QTdrugs.org Lists
Check our Drugs to Avoid page for the most recent additions and changes and for a warning about apps and other lists.
Philips AED recall
Certain HeartStart AED’s (HeartStart FRx, HeartStart HS1 Home, and HeartStart HS1 OnSite) made by Philips Medical Systems, may be unable to deliver needed defibrillator shock in a cardiac emergency situation, the U.S. Food and Drug Administration said. These devices were previously recalled but the FDA wanted to let everyone know that you should keep them in use until you have a new AED to replace the defective one.
PCORI Awards $93.5 Million to Develop National Network to Support More Efficient Patient-Centered Research
The SADS Foundation is part of a Patient-Powered Research Network called “The Health eHeart Alliance: A Patient-Powered Research Network Focused on Cardiovascular Health” which received an award from PCORI.
NIH Registry
A registry of deaths in young people from conditions such as heart disease and epilepsy is being created to help researchers define the scope of the problem and set future research priorities. The National Institutes of Health and the Centers for Disease Control and Prevention are collaborating to create the Sudden Death in the Young Registry.
NBC Coverage of Heart Safe Schools
All the schools in Ohio's Pickering School District have been accredited as Heart Safe!
Kiester Family Holds Fundraiser for SADS
LANSING | The owners of Jack’s Sports Bar in Lansing are hoping to bring some good out of a heartbreaking loss. The couple, Lansing residents Jeff and Jeanette Kiester, lost their only son, Jake, almost two years ago due to an abnormal cardiac rhythm condition at age 26. The couple will host a fundraiser at their bar to benefit the SADS Foundation, an organization with the mission “To save the lives and support the families of children and young adults who are genetically predisposed to sudden death due to heart rhythm abnormalities” according to the website, www.sads.org.
8/20/2014 - Acting Governor Guadagno Signs Lifesaving Bipartisan Legislation
New Law Requires High School Students to Receive Hands-On CPR and AED Training Trenton, NJ - Taking action to prevent the tragic loss of life from sudden cardiac arrest, Acting Governor Kim Guadagno today signed Assembly Bill No. 2072 into law, requiring high schools to provide students with hands-on training in cardiopulmonary resuscitation (CPR) and the use of an automated external defibrillator (AED).
Sports Participation & LQTS
SADS Medical Education Committee Member, Peter Aziz, MD of the Cleveland Clinic recently published research on LQTS and sports. Participation in both competitive and recreational sports may be safer than previously thought for pediatric patients with congenital long QT syndrome (LQTS).
AED Insurance Survey
If you or a family member have been denied coverage for an AED by your insurance company, read more...
First Schools in Utah to be Heart Safe School Accredited
Nibley Park and Emerson Elementary are the first schools in Utah to be Heart Safe School accredited!
Research Paper by Rachelle Cook
This month we are pleased to feature a research paper written by Rachelle Cook, one of our students with CPVT. She wrote “Genetic Testing on Neonates for Cardiac Arrhythmias” for her high school AP English class. Not only does she share with us some of her personal story, but she also presents a lot of great information about the symptoms and genetics of channelopathies. Rachelle also makes a compelling case for screening of young children.