Supporting Families. Saving Lives.
Molecular Autopsy in Sudden Cardiac Death Cases
LIVE-LQTS and LIVE HCM Exercise Studies
CPVT Registry and Biobank
Cardiac Channelopathy Novel Gene Discovery Program
Identification of Successes, Challenges and Proposed Improvements to Familial Risk Communication After Sudden Cardiac Death of a Young Family Member
Sudden Death in the Youth (SDY) Registry
Exercise and Sudden Cardiac Arrest Survey
Prospective Identification of Long QT Syndrome in Fetal Life
LQT3 Registry
Sudden Cardiac Arrest in a Child Who Survived
Empiric Quinidine for Asymptomatic Brugada Syndrome
Genetics of Cardiac Arrhythmias Study
Families with LQTS (Fathers, children, siblings)
Sudden Unexplained Death Network at Vanderbilt
Activity, Relationships and Illness
Relationship Satisfaction and Family Coping
Habits and Social Activities of Teens and Young Adults with Cardiac Rhythm Disorders
Phosphorus Responsible Testing Research Study
NIH-Funded Clinical Trial for CPVT
Evaluating Women's Experiences With ICDs: Check out the results!
ICD Sports Registry Needs Athletes Study closed, results pending
LQTS Pregnancy Research Study: Check out the results!
Measuring the Psychological Effects of Growing Up at Risk for LQTS: Check out the results!
ICD Patients: Benefits of Internet Resources: Study closed, results pending
LQTS Emergency Room Experiences Study: Check out the results!
Physician decision making with children and adolescents diagnosed with LQTS: Study closed, results pending
SADS Insurance Study: See an abstract of the results here!