Enrolling Research Studies

• ARVD/C Research Studies
• Link My Heart - Brugada Project
• Study of People with Unexpected SADS Genetic Results
• Understanding Family Communication in East Asian Individuals
• Long QT & Pregnancy - Mobile Fetal Magnetocardiography
  
• CPVT Registry and Biobank
• Cardiac Channelopathy Novel Gene Discovery Program
• Multicenter, International study on Pregnancy and LQTS
• Sudden Death in the Youth (SDY) Registry
• Prospective Identification of Long QT Syndrome in Fetal Life

Completed Research Studies

• LIVE-LQTS and LIVE HCM Exercise Studies CLOSED
• Families with LQTS (Fathers, children, siblings)
• Sudden Cardiac Arrest in a Child Who Survived
• Exercise and Sudden Cardiac Arrest Survey
  
• A Retrospective Analysis of Coping Strategies of Athletes Diagnosed with Long QT Syndrome Whose Sports Participation was Limited or Restricted
• Identification of Successes, Challenges and Proposed Improvements to Familial Risk Communication After Sudden Cardiac Death of a Young Family Member
• Phosphorus Responsible Testing Research Study
  
• NIH-Funded Clinical Trial for CPVT
• Activity, Relationships and Illness
• Relationship Satisfaction and Family Coping
• Habits and Social Activities of Teens and Young Adults with Cardiac Rhythm Disorders
• Evaluating Women's Experiences With ICDs:  Check out the results!
• ICD Sports Registry Needs Athletes Study closed, results pending
• LQTS Pregnancy Research Study: Check out the results!
  
• Measuring the Psychological Effects of Growing Up at Risk for LQTS:  Check out the results!
• ICD Patients: Benefits of Internet Resources:  Study closed, results pending
• LQTS Emergency Room Experiences Study:  Check out the results!
• Physician decision making with children and adolescents diagnosed with LQTS:  Study closed, results pending
• SADS Insurance Study:  See an abstract of the results here!