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Research Studies
Featured Research Studies
Study of People with Unexpected SADS Genetic Results
NEW ARVD/C Drug Research Study
Post-Mortem Genetic Testing Awareness and Referrals
Mobile Fetal Magnetocardiography
CPVT Registry and Biobank
Cardiac Channelopathy Novel Gene Discovery Program
Multicenter, International study on Pregnancy and LQTS
Enrolling Research Studies
ARVD/C Research Studies
Molecular Autopsy in Sudden Cardiac Death Cases
LIVE-LQTS and LIVE HCM Exercise Studies
Sudden Death in the Youth (SDY) Registry
Long QT and Pregnancy
Examining the Initial Communication of Cardiac Related Risk to First Degree Relatives
Dynamics and Functioning through a Cardiac Arrhythmia Diagnosis
Women Living with ICDs and Pacemakers
Prospective Identification of Long QT Syndrome in Fetal Life
LQT3 Registry
Empiric Quinidine for Asymptomatic Brugada Syndrome
Genetics of Cardiac Arrhythmias Study
Sudden Unexplained Death Network at Vanderbilt
Completed Research Studies
Families with LQTS (Fathers, children, siblings)
Sudden Cardiac Arrest in a Child Who Survived
Exercise and Sudden Cardiac Arrest Survey
A Retrospective Analysis of Coping Strategies of Athletes Diagnosed with Long QT Syndrome Whose Sports Participation was Limited or Restricted
Identification of Successes, Challenges and Proposed Improvements to Familial Risk Communication After Sudden Cardiac Death of a Young Family Member
Phosphorus Responsible Testing Research Study
NIH-Funded Clinical Trial for CPVT
Activity, Relationships and Illness
Relationship Satisfaction and Family Coping
Habits and Social Activities of Teens and Young Adults with Cardiac Rhythm Disorders
Evaluating Women's Experiences With ICDs
: Check out the results!
ICD Sports Registry Needs Athletes
Study closed, results pending
LQTS Pregnancy Research Study
: Check out the results!
Measuring the Psychological Effects of Growing Up at Risk for LQTS: Check out the results!
ICD Patients: Benefits of Internet Resources
: Study closed, results pending
LQTS Emergency Room Experiences Study
:
Check out the results!
Physician decision making with children and adolescents diagnosed with LQTS: Study closed, results pending
SADS Insurance Study
: See an abstract of the results
here
!
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Warning Signs
Family history of unexpected, unexplained sudden death under age 40.
Fainting or seizure during exercise, excitement or startle.
Consistent or unusual chest pain &/or shortness of breath during exercise.